New Bessborough revelations show wider range of products tested on children

Previously unseen details of a medical trial by Glaxo in 1974 at a Cork mother and baby home have generated a whole new series of questions for the nuns and the companies involved.

For almost two decades, the public has been drip-fed revelations about medical testing by British pharmaceutical companies on children in care in Ireland.

These tests involved the trialling of various vaccine combinations by predecessor companies of pharmaceutical giant GlaxoSmithKline (GSK) — Glaxo Laboratories and Burroughs Wellcome. These revelations generated more questions than answers — answers it is hoped the Mother and Baby Homes Commission can provide.

However, it has now emerged thashoot Glaxo Laboratories was also trialling other products on children here — namely lactose and baby formulas.

This occurred in 1974 in the Bessborough Mother and Baby Home in Cork and had never been made public. Once again, the revelation has generated lots of questions but few answers.

A trial sheet obtained by the Irish Examiner reveals that Glaxo Laboratories carried out a “clinical acceptability and safety trial” of “Golden Ostermilk and Lactose”, while a separate trial sheet reveals a trial of “overseas milk powders (by 0111)”.

The “clinician responsible” for the tests was Eithne Conlon — a local Cork GP who worked with the institution for many years.

The trial sheets recorded a range of reactions to the products. These included vomiting (slight, moderate, severe, or none), excessive regurgitation, wind (slight, moderate, severe, or none), stools (locae, normal, or constipated) and stool colour (yellow, grass green, olive green, yellow green, no stools, meconium, changing).

Other “abnormal conditions” were also noted. These included excessive crying, irritability, napkin rash, thrush, and others.

The latter trial sheet was contained in the records of Breda Bonass, who had sought information on her medical history from Tusla under Freedom of Information.

The former only came to light when Ms Bonass sought further information from Tusla.

However, this only confused matters further as the trial sheet for “Golden Ostermilk and Lactose” was found in the antenatal records of other women — and all contain identical details including patient numbers — something which the FOI officer told Ms Bonass was “perplexing”.

“In the majority of cases where this record was present the record was glued to another copy of the same record [front to front] and details about the respective baby’s feeding schedules, types of formula given, reactions to feeds, etc, were hand written on this paper,” said the FOI officer.

“When I pried the two sheets apart I noticed that these trial sheets all contained the exact same patient and trial numbers and identifying details as the trial sheet located in your file.”

Ms Bonass went to the religious order which ran Bessborough — the Sisters of the Sacred Hearts of Jesus and Mary — and GSK looking answers.

The nuns responded via their solicitors, telling her they no longer held the records nor had any access to them and that she should go to Tusla.

GSK’s UK data protection section informed her that the data had been “destroyed” as the “retention period has already expired some years ago”.

The Irish Examiner contacted GSK in an effort to get answers as to why this trial was carried out in Ireland, how many children it involved and if consent was sought.

It responded by saying it was “unable to locate any records relating to a 1974 study” but that it had located records relating to a trial from 1967.

“The assumption therefore would be that the 1974 study’s purpose was to compare current milk powder with a newer formulation. The records contain no names or information about the children involved,” said GSK in a statement.

It had no documentation to explain why Ireland was chosen as a location, but that the 1967 trial was also carried out in the UK, Kenya, Argentina, Malaysia, “and probably more”.

With regard to the consent of mothers, GSK said that, due to the fact that it had no records, it could not confirm who gave consent but that its assumption was that it would have been “those Sisters running the homes as the legal guardians”.

Obtaining consent would been left to the doctor conducting the trial.

The company said that, to the best of its knowledge, no financial remuneration would have been provided to the Order for allowing children in its care to be used for the trial.

GSK said the identical sheets were probably blank forms or templates and that the information entered “appear to be codes, possibly relating to a spreadsheet collating all responses”.

It also confirmed that this was the first time it was made aware of this study and that it had not been asked to disclose it in any official capacity, “as this is clearly outside of the current Commission’s [Into Mother and Baby Homes] vaccines inquiry”.

That, of course, is technically correct. The Commission is only tasked with examining vaccine trials carried out by GSK legacy companies. This latest revelation confirms that it wasn’t just vaccines that were being tested on children in care here.

The involvement of Burroughs Wellcome and Glaxo Laboratories in trials on children in Mother and Baby Homes and other institutions is worth repeating.

It’s been a long tale which saw a previous State inquiry —the Commission to Inquire into Child Abuse (CICA) in 2000 — try and fail to fully investigate the matter.

Before that inquiry was halted following a Supreme Court ruling in 2002, GSK had confirmed just three vaccine trials in the 1960s and 1970s involving more than 250 children.

In 2011, in a response to an RTÉ investigation, it acknowledged a fourth trial but stated that this was the only other clinical trial sponsored by Wellcome using children in institutions in Ireland.

However, in 2014, documents uncovered by Michael Dwyer of UCC’s School of History revealed a fifth trial of a measles vaccine on 34 children took place in 1965.

It was carried out by Irene Hillary and Patrick Meenan of UCD’s microbiology department and AJ Beale of Glaxo Laboratories. The UCD academics (both now deceased) were also involved in the first two vaccine trials also.

Earlier that year, Dr Dwyer also discovered evidence that Wellcome had carried out vaccine trials on more than 2,000 Irish children in 24 residential institutions between 1930 and 1935.

Despite this, the Inter-Departmental Group on Mother and Baby Homes published in 2014 only referred to three vaccine trials. It also failed to mention a 1965 trial of a 5-in-1 vaccine carried out on Philip Delaney at Bessborough Mother and Baby Home in Cork.

Questions around the involvement of British pharmaceutical companies in vaccine trials in Ireland have been popping up in the media for almost three decades now.

They first hit the headlines in the 1990s, but it wasn’t until 1997 that then health minister Brian Lenihan gave an undertaking that the matter would be examined.

This resulted in the Kiely Report in 2000, by Jim Kiely, chief medical officer of the Department of Health, which confirmed three trials had been conducted on behalf of the pharmaceutical company the Wellcome Foundation.

The i nstitutions involved were Wellcome Laboratories in Britain, the Department of Medical Microbiology in UCD, and the Eastern Health Board.

The first trial took place between December 1960 and November 1961 in four Mother and Baby Homes — St Patrick’s on the Navan Road in Dublin (14 children), Bessborough in Cork (25 children), Castlepollard in Westmeath (six children), and Dunboyne (nine children).

Four children from Stamullen baby home in Meath were also used for this trial.

The purpose of the trial was to look at the response the children would have to a 4-in-1 vaccine — diphtheria, whooping cough, tetanus, and polio.

The second trial involved 69 children from St Anne’s Industrial School in Booterstown in Dublin being administered an intranasal rubella vaccine. A further 53 children from the wider community in Kilcullen in Westmeath were also used in this trial.

The first two trials were carried out by Prof Hillary and Prof Meenan from the department of Microbiology in UCD, as well as other doctors.

The third trial involved 53 children in a number of residential institutions in Dublin including St Patrick’s Home, Madonna House, Bird’s Nest, and Boheenaburna.

A total of 65 children living at home in Dublin also received the vaccine.

The aim of the third trial was to compare commercially available batches of the 3-in-1 vaccine — Trivax and Trivax D — with that of equivalent vaccines prepared for the trial. There is no published paper or report of this trial, but the Eastern Health Board was aware it was being conducted.

Dr Kiely’s report in 2000 concluded that, given the conditions which the vaccines sought to counter, the decision to conduct the trials was “acceptable and reasonable”.

However, Dr Kiely said there was a lack of documentation available to clarify whether consent was either obtained or sought from the parents of the children or the managers of the institutions.

However, an entry in the 1962 British Medical Journal concerning the first trial seems to confirm that parental consent was not sought.

“We are indebted to the medical officers in charge of the children’s homes for permission to carry out this investigation on infants under their care,” it wrote.

Responding to the Kiely Report in 2000, Prof Hillary said it was her “invariable practice at the time to obtain consent of the competent authority”, be it the mother, the manager, or the medical officer.

However, no record of written consent has been acknowledged. The religious orders who ran the homes involved in the trials have also denied that they authorised any clinical trials.

Of the victims of the vaccine trials who have located their natural mothers, all mothers have said they were not asked for their permission.

In 2000, then minister for children Micheál Martin admitted the Kiely report was “incomplete” and raised “as many questions as it answered”.

However, despite this, Mr Martin reassured the Dáil that the trials appeared to have had no medically negative consequences for any of the children involved.

In an effort to deal with the matter, the Government decided to extend the terms of reference of CICA.

This was done despite objections that the trials could not adequately be dealt with by an inquiry looking primarily into physical and sexual abuse.

The ‘Vaccines Module’ of CICA began investigating in early 2002.

It obtained documentation from GSK — the successor of Wellcome — and identified the names and addresses of some of those involved in the trials.

It also sought records from a range of religious orders who were caring for the children used in the trials.

In November of last year, the Irish Examiner revealed that the files of vaccine trial victims from Bessborough involved in the 1960/61 4-in-1 vaccine were altered just weeks after the CICA sought discovery of records from the Sisters of the Sacred Hearts of Jesus and Mary.

The document listing the changes opens with: “8.8.02 Checked the 20 files.” This is immediately followed by: “9.8.02 Made the changes.”

The changes made to files Nos 5, 8, 11, 12, and 15-20 are then detailed.

The changes include:

  • The alteration of discharge dates of mothers (by a period of one year and two years):
  • The changing of discharge dates of children;
  • The changing of admission dates of mothers;
  • The alteration of the age of a mother (by two years);
  • The alteration of dates of adoption;
  • The changing of baptism dates and location of baptism;
  • The insertion of certain named locations and information into admission books.

In a series of statements, the order said it wished to “categorically state that no documents were altered”.

“In your recent correspondence, you are suggesting that something illegal or inappropriate had occurred in regard to the documents to which you refer. This is entirely untrue; and we will continue to deal directly with the official commission on all such matters,” said a statement.

This document listing the changes was discovered in the Bessborough archive handed over to the HSE by the nuns in 2011.

It wasn’t discovered until 2016 — some 13 years after CICA’s investigation into the vaccine trials was suspended.

This occurred after the probe was hit with a Supreme Court ruling which upheld Prof Meenan’s challenge against a High Court order directing him to give evidence before the inquiry.

The court also criticised the decision to ask the commission to examine the vaccine trials in the first place, stating they had “only the most tenuous connection, if any, with the appalling social evil of the sexual and physical abuse of children in institutions, which was the specific area into which the commission was established to inquire”.

Mr Justice Hardiman stated that Prof Meenan’s involvement in vaccine trials related only to one trial in 1960/61 and that the issue of the “reputational damage” associated with being involved with a commission primarily looking at sexual abuse had to be considered.

Following this, Prof Hillary challenged the Government’s order directing an investigation into the vaccine trials and when the the Government declined to appeal this decision, the work of the Vaccines Module ceased in November 2003.

However, at the time, many people believed there were far more than three trials carried out by Wellcome here.

The Third Interim Report from CICA in December 2003 confirmed as much when it stated that the documentation it received from GSK “disclosed a considerable amount of information in relation to other vaccine trials conducted in the State”.

When RTÉ’s Prime Time asked the pharmaceutical giant about this statement in 2011, it confirmed a fourth trial had taken place in 1965. This trial involved giving differing doses of the measles vaccine to 12 babies aged between nine and 19 months in the Sean Ross Abbey mother-and-baby home in Tipperary.

GSK stated that this fourth trial was the only other clinical trial sponsored by Burroughs Wellcome using children in institutions in Ireland.

Then, in 2014, the Irish Examiner revealed a fifth trial also occurred during this period.

An article in The Lancet medical journal in August 1965, discovered by Dr Dwyer confirms that Glaxo Laboratories Ltd carried out another measles vaccine trial on 34 children aged between eight months and just over two years.

The trial was carried out by Prof Hillary and Prof Meenan and AJ Beale of Glaxo Laboratories. It is also the first trial which confirms Glaxo Laboratories involvement in a vaccine trial.

The report does not mention an institution. However, it makes reference to the fact that the reaction to the vaccine were monitored by “the adults looking after the children”.

It also says examinations were done on the children from day six to 14 at the same time — 6pm — indicating the children were in a group setting.

However, in response, GSK disagreed that these references amounted to evidence that the trial was carried out on children in care.

The pharmaceutical giant pointed out that, in other papers by the same investigator, it was stated explicitly that the study was carried out on children in care. GSK said if it had any evidence that this trial was carried out on children in care, it would have handed it over to the CICA at the time.

So, three years on, we now know that it wasn’t just vaccines that were being tested on children in Ireland’s Mother and Baby Homes.

Now, we know that clinical acceptability and safety trials of lactose, Golden Ostermilk and “overseas baby powders” were being trialled in at least one Mother and Baby Home.

Can and will the commission examine this latest development? Why was a British company testing such products in Ireland?

Were religious orders benefiting financially by allowing children in their care to be involved in such trials? Was the consent of mothers obtained, or was it even sought?

The Mother and Baby Homes Commission said it will investigate all aspects of living conditions and care arrangements at Bessboro.

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Tuam and Bessborough: Government already knew of deaths

The State has said it was horrified by the revelations about the 796 babies buried at Tuam. However, HSE reports into Tuam and Bessborough mother and baby homes had been prepared for the Government two years previously, writes Conall Ó Fátharta

The latest revelations about the Tuam and Bessborough mother and baby homes raise a number of serious questions as to why a State inquiry into the issue was not launched three years ago.

Material obtained by the Irish Examiner shows that the HSE examined both Tuam and Bessborough as part of the Magdalene laundries inquiry in 2012.

What it uncovered was so shocking that senior HSE figures recommended that the minister be immediately informed so that “a fully fledged, fully resourced forensic investigation and State inquiry” could be launched.

However, it would be almost another two years before an inquiry was announced, on foot of the revelations of historian Catherine Corless.

The HSE material directly addresses infant deaths, and records that the nuns had been soliciting money from parents of children that had been discharged or died. Most shocking of all, concern is expressed that almost 1,000 children may have been trafficked from Tuam for adoption, “possibly in the USA”, noting that “this may prove to be a scandal that dwarfs other, more recent issues with the Church and State”.

A separate report on Bessborough, written in 2012, spoke of “staggering” numbers of children listed as having died at the institution. The author of the report says infant mortality at Bessborough between 1934 and 1953 is “a cause for serious consternation”. Curiously, no deaths were recorded after 1953 but 478 children died in this 19-year period — which works out as one child every fortnight for almost two decades.

Perhaps most shocking of all is the view of the report that death certificates may have been falsified so children could be “brokered into clandestine adoption arrangements, both foreign and domestic” — a possibility the HSE report said had “dire implications for the Church and State“.

It is worth noting that the HSE was making such allegations after examining the institution’s own records. The report, which runs to more than 20 pages, notes that these records reveal a culture “where women and babies were considered little more than a commodity for trade amongst religious orders” and that they were “provided with little more than the basic care and provision afforded to that of any individual convicted of crimes against the State”.

The report highlights the “intricacies of Bessborough’s accounting practices”, and that “detailed financial records and accounts were not handed over to the HSE by the Sacred Heart Order”.

We also learn of the nuns’ “preoccupation with material assets” and “preoccupation with materialism, wealth, and social status”, and that the women provided “a steady stream of free labour and servitude”. The nuns also received “financial renumeration” for the children of these women.

With regard to the money made by the order both via adoption and by making natural mothers pay for their care, the report specifically states that “further investigation is warranted into these practices”.

Thus it was that, in 2012, while preparing material for the McAleese investigation into Magdalene laundries, two separate HSE reports noted the issue of infant deaths at both Tuam and Bessborough. One noted that almost 500 children died in Bessborough in less than 20 years.

Both reports mentioned the possibility that children had been trafficked for adoption with one speculating that it was possible that death certificates were falsified so children could be “brokered” for adoption.

Both mentioned that these issues needed to be investigated as a matter of urgency; one was so concerned about the implications of what was located at Tuam that it recommended the minister be informed immediately so that a State inquiry could be launched.

It also noted the possibility that up to 1,000 children may have been trafficked from the Tuam mother and baby home, which could “prove to be a scandal that dwarfs other, more recent issues with the Church and State”.

None of the concerns are mentioned in the McAleese report. However, the issue of mother and baby homes was outside of its terms of remit.

In that report, Martin McAleese points out that the committee uncovered material that was, “strictly speaking, outside its core remit” but that he was happy to include it “in the public interest”. He said some of this material “may challenge some common perceptions” about Magdalene laundries.

The ‘Report of the Inter-Departmental Group on Mother and Baby Homes’, published by the Department of Children and Youth Affairs in July 2014, also failed to mention any of these concerns.

The Department of Children and Youth Affairs said neither it nor the minister were made aware of the concerns at the time but that the issues were being discussed in the context of the McAleese report, which was conducted under the auspices of the Department of Justice.

It stated that the minister became involved in the issue once material around infant deaths in Tuam became public in mid-2014, and launched a commission of inquiry on foot of these revelations.

The Irish Examiner reported at the time of the State apology to the Magdalene women that the Government may have been fearful that mother and baby homes would be next.

This newspaper has frequently speculated that the elephant in the room on such issues is the spectre of forced and illegal adoptions.

When, thanks to the tireless work of Ms Corless, the world was made aware around this time last year of the 796 babies that lay forgotten in Tuam, the Government expressed horror at the revelations.

The then children’s minister, Charlie Flanagan, told the Dáil that the deaths brought the horrors of the mother and baby homes to the attention of the Government, as the issue had not featured prominently before then.

“The revelations in Tuam, Co Galway, have brought to the fore the situation in other mother and baby homes throughout the country,” said Mr Flanagan. “The practices in mother and baby homes have to date not featured prominently in the various reviews and investigations which have dealt with many of the past abuses which were inflicted on vulnerable citizens, many of them women and children.”

However, we now know that the State had known about both Tuam and Bessborough for nearly two years. The HSE had investigated both institutions in 2012 when it was examining the health authorities’ interaction with the Magdalene laundries.

Just last month, the Department of Children reiterated its belief that an audit of adoption records to ascertain the scale of illegal and forced adoption that occurred here “would yield little useful information”, as there would be “little, if any, supporting information in relation to these arrangements” on the files.

This statement was issued in response to revelations that the department was told by an Adoption Authority of Ireland (AAI) delegation in June 2013 that one adoption agency, St Patrick’s Guild, had “several hundred” illegal birth registrations on its books. The agency holds 13,500 adoption files — one quarter of all adoption files in the country. The AAI speculated that the number of illegal adoptions may run into thousands.

This latest material shows that the HSE was raising extremely disturbing issues around infant deaths and the possible trafficking for the purposes of adoption relating to Tuam and Bessborough one year earlier again, in 2012.

These concerns were raised on examination of the very files that the department continue to feel are not worth auditing.

Adoption support groups have repeatedly said the Government refuses to order such an audit because it fears what will be found. Given what the HSE found way back in 2012, this may well be the case.

We finally have an inquiry into the scandal of mother and baby homes. It’s not before time. It was launched because the Government had no option — an international media storm about the Tuam revelations made sure of that.

We now know it could have and should have been launched earlier — almost two years earlier.

http://www.irishexaminer.com/ireland/special-investigation-government-already-knew-of-baby-deaths-334260.html

Vaccine trial victim to lodge complaints over altered files

One of the victims of the Bessborough vaccine trial is to make a formal Garda complaint after it emerged files were altered in 2002.

On Tuesday, the Irish Examiner revealed the files of mothers and children used in the 1960/61 4-in-1 vaccine trial were altered in 2002 — just weeks after the Commission to Inquire into Child Abuse sought discovery of records from the religious order running the home.

Mari Steed was born in Bessborough in 1960 and subsequently adopted in the US. Her natural mother’s file is one of those listed as having been changed. She plans to make a formal complaint to the gardaí and Data Protection Commissioner.

“Now that it’s been confirmed the information in my file has been altered, I feel I have an obligation to make both a Garda and data protection complaint. How many other files, not even relevant to the vaccine trials, may have been altered? People have a right to know this. I am awaiting legal advice on jurisdiction for the Garda filing and then will make both complaints as soon as possible,” she said.

Ms Steed also said Tusla, which now holds the records, had “an ethical, moral, and public interest” in contacting all of the people it can confirm were part of a trial.

The Irish Examiner put a series of questions to the Sisters of the Sacred Hearts of Jesus and Mary in relation to the document. It declined to answer any of them.

A statement from Ruairí Ó Catháin solicitors, representing the order, stated it had “no immediate knowledge of any specific event” concerning alterations made to records.

In a separate statement, the order said it wished to “categorically state that no documents were altered” and that it would deal with the Mother and Baby Homes Commission of Investigation on all such matters.

Material obtained  under Freedom of Information shows that changes were made to the records of mothers and children used in the 1960/61 4-in-1 vaccine trials.

The Commission to Inquire into Child Abuse (CICA) had sought discovery of the records from the Sisters of the Sacred Heart of Jesus and Mary on July 22, 2002. An affidavit was sworn on October 3, 2002, and on a number of later dates in 2002 and 2003.

The document listing the changes opens with: “8.8.02 Checked the 20 files.” This is immediately followed by: “9.8.02 Made the changes.” The changes made to files Nos 5, 8, 11, 12, and 15 to 20 are then detailed.

 

The changes include:

  • The alteration of discharge dates of mothers (by a period of one year and two years);
  • The changing of discharge dates of children;
  • The changing of admission dates of mothers;
  • The alteration of the age of a mother (by two years);
  • The alteration of dates of adoption;
  • The changing of baptism dates and location of baptism;
  • The insertion of certain named locations and information into admission books.

Tuam and Bessborough: Houses of horror

The Tuam mother and baby home should not be treated as an individual scandal, but as part of a national trafficking network that commodified people, says Conall Ó Fátharta.

 

The women and children in Bessborough’s care were ‘considered little more than a commodity for trade amongst religious orders’.

 

“This may prove to be a scandal that dwarfs other, more recent issues with the Church and State…”

There’s that word, “scandal”, again. As a nation, we don’t tire of hearing it.

That time it was used by senior management in the HSE, in 2012, in relation to the contents of an archive of the Tuam mother and baby home, two years before the Tuam babies scandal broke. It wasn’t the first time the word was used in relation to mother and baby homes and the horrors they hold.

Seventy years earlier, the same word was used by parliamentary secretary to the then minister for local government and public health, Dr Con Ward, in relation to an 82% infant death rate at the Bessborough Mother and Baby Home. That rate had been reported to state inspectors.

Two things are instructive. Not only has the State known for decades about this issue, but it is impossible to look at Tuam, or mother and baby homes, in isolation. Yet, that is exactly how this issue is playing out.

First, there is a scandal. Then there is an outcry. Then, there is an inquiry, but a limited one.

Focus on the narrow and ignore the broader picture. It’s a well-worn path.

Instead of examining the bigger picture of how unmarried women and children were treated in a sprawling network of interlinking institutions, private agencies and individuals, we compartmentalise.

We treat the Magdalene Laundries, and then the mother and baby homes, as if they are distinct entities, instead of as part of the same story.

And what about the adoption agencies, private nursing homes, maternity hospitals, priests, doctors, and even some prominent Irish names?

What about the baby rackets, the trafficking of children, the thousands of illegal adoptions, the falsification of records? Maybe one day we will get to that.

While we have spent the last year laying flowers at the feet of monuments honouring the dead male Irish heroes of 1916, female heroes lie in graves that are unmarked, forgotten, and largely ignored. Their children lie in other graves, or live, having been adopted, in both Ireland and abroad, many in very dubious circumstances.

This is a history we don’t like to talk about. We have barely written about it.

This is a history in which women who didn’t fit the idealised vision of newly independent Ireland were hidden behind high walls, their children removed from them, boarded out, adopted, or trafficked abroad.

We still don’t know how many were used for medical trials. Thousands more died, while hundreds of infant bodies were used by Irish universities for anatomical research and buried in the Angels’ Plot in Glasnevin as “anatomical subjects”.

The children’s crime? Simply the circumstances of their birth. Their mothers’ crime? That they were unmarried women.

The mistake, now, would be to simply focus on Tuam and the deaths that occurred there. This is a scandal that is as much about the living as it is about the dead.

Very specific concerns about infant mortality in such institutions were raised as early as 1945. The previous year, state inspectors reported that out of 124 infants admitted to the Bessborough home after birth, 102 died — a death rate of 82%.

[timgcap=A memorial at Bessborough, Blackrock, Cork.]zzzBessboroughBlackrockMotherAndBabyMemorial100317_large.jpg[timgcap]

It briefly led to the government of the day banning pregnant women being sent to the home and led Dr Con Ward to write to then Bishop of Cork, Daniel Cohalan, to express fears about a “public scandal” over the figures.

Our most recent governments fare little better, in terms of institutional knowledge of such shocking infant death rates.

In 2012, senior HSE management was expressing concern at what was being found in relation to both Tuam and Bessborough.

Two reports on the institutions were prepared by the HSE, while it was preparing material for the McAleese investigation into Magdalene Laundries.

These reports not only explicitly reference infant mortality rates, but also express serious concerns about the possible trafficking of children from the institutions. They also mention that these issues needed to be investigated as a matter of urgency.

IN THE case of Tuam, a note of a teleconference call on October 12, 2012, reveals that senior management in the HSE felt what had been discovered warranted a state inquiry.

The call involved then assistant director of the Children and Family Service at the HSE, Phil Garland, and then head of the medical intelligence unit, Davida De La Harpe, expressing concern that 1,000 children had been trafficked from the Tuam mother and baby home in what could “prove to be a scandal that dwarfs other, more recent issues with the Church and State”.

These concerns had been raised by the principal social worker for adoption in HSE West, who had found “a large archive of photographs, documentation, and correspondence relating to children sent for adoption to the USA” and “documentation in relation to discharges and admissions to psychiatric institutions in the Western area”.

The archive contained letters from the Tuam mother and baby home to parents, asking for money for the upkeep of their children, and notes that the duration of stay for children might have been prolonged by the order for financial reasons.

It also contained letters to parents asking for money for the upkeep of some children who had already been discharged or who had died.

The social worker, “working in her own time and on her own dollar”, had compiled a list of “up to 1,000 names”, but said it was “not clear yet whether all of these relate to the ongoing examination of the Magdalene system, or whether they relate to the adoption of children by parents, possibly in the USA”.

Those on the conference call raise the possibility that if there is evidence of trafficking, “it must have been facilitated by doctors, social workers, etc, and a number of these health professionals may still be working in the system”.

The note concludes by stating that, due to the gravity of what was being found, an “early warning letter” be written to the national director of the HSE’s quality and patient safety division, Philip Crowley, suggesting “that this goes all the way up to the minister”.

“It is more important to send this up to the minister as soon as possible: with a view to an inter-departmental committee and a fully fledged, fully resourced forensic investigation and state inquiry,” concludes the note.

A week later, in a separate report sent by Mr Garland to Mr Crowley, and which CC’d then national director of Children and Family Services, Gordon Jeyes, and Ms De la Harpe, Dr Declan McKeown, of the medical intelligence unit, outlines concerns about death rates at both Tuam and Bessborough.

Dr McKeown notes that the infant mortality rate for Tuam was “approximately 20%-25%, similar to that recorded in Bessborough”. He also raised questions as to the veracity of such death rates.

“Queries over the veracity of the records are suggested by causes of death such as ‘marasmus’ in a 2 ½-month-old infant; or ‘pernicious anaemia’ in a four-month-old. These diagnoses would be extremely unusual in children so young, even with the reduced nutrition of the time,” he said.

A separate report into Bessborough not only revealed that the deaths of hundreds of children were recorded in the order’s own register, but that, similar to Tuam, the operation was aimed at making money.

The examination of the order’s own records found that the women and children in its care were “considered little more than a commodity for trade amongst religious orders”.

Minutes from meetings of the Sacred Heart Adoption Society’s board of management “further lend evidence to the order’s preoccupation with materialism, wealth, and social status”, while the wealth and social status of the adoptive parents was often the prime concern when deciding whether they would receive a child.

None of the concerns made it into the McAleese report, as they were outside its terms of remit.

However, that report did include other material that was, “strictly speaking, outside its core remit”, but deemed “in the public interest. This material “may challenge some common perceptions” about Magdalene laundries.

The Report of the Inter-Departmental Group on Mother and Baby Homes, published by the Department of Children and Youth Affairs in July 2014 also failed to mention any of these concerns.

This is despite the fact that two government department’s had seen the 2012 HSE report on Bessborough, which revealed that hundreds of children died at the institution over a 19-year period.

All of the HSE concerns were being raised almost two years before the Tuam babies scandal made international headlines.

Where adoptions fit into all of this should be of particular interest. Adoption campaigners have spent years repeatedly calling for an audit of all adoption records held by the State. So far, these calls have fallen on deaf ears.

It’s hard to understand why. The Adoption Authority informed the government in 2013 that there “may be thousands” of cases where people had their birth history falsified, so they could be illegally adopted. This has never been investigated.

The Department of Children and Youth Affairs was told by an AAI delegation in June, 2013 — more than a year before the mother-and-baby home scandal — that there were “at least 120 [confirmed] cases” of illegal registrations.

This is not a small number, given the small sample size that would have been examined.

However, the AAI went further, stating that this could well be the tip of the iceberg and that there “may be thousands” more. It named a well-known former private nursing home — St Rita’s, in Dublin — where women went to give birth to their children, before having to place them for adoption, as a “huge source of illegal registrations”.

It specifically named one religious-run former adoption agency — St Patrick’s Guild, in Dublin — as being “aware of several hundred illegal registrations”, stating that the agency “are not seeking the people involved”, but were, rather, “waiting for people to contact them”.

The agency’s 13,500 adoption files — one of the largest archives in the country — are now in the hands of Tusla.

In a statement to this newspaper, AAI chief executive, Patricia Carey, said that the ‘may be thousands’ comment made at the meeting was “a throwaway remark” and was “not based on verifiable facts”.

However, the fact that the department had called for a meeting on the subject, and that an AAI delegation was willing to speculate at all on such a large number, indicates that the issue was firmly on the radar of the adoption regulator.

Any woman or adopted person who was through one of the above institutions will not be examined by the current commission, unless her case can be linked to one of the institutions under its remit.

Despite this, and countless media reports of adoptions being contracted on the back of documentation which is as best extremely dubious, the Department of Children and Youth Affairs has stood steadfastly to the line that an audit of adoption records, to ascertain the scale of illegal and forced adoptions, “would yield little useful information”, as there would be “little, if any, supporting information in relation to these arrangements” on the files.

It is impossible to make such a claim without at least examining the records and, secondly, it’s blatantly clear that these records do contain evidence of illegal adoptions.

Adoption support groups have repeatedly said that government refuses to order such an audit, because it fears what will be found. Given what the HSE found in 2012, in relation to Tuam and Bessborough, this may well be the case.

More than one government minister has said, on record, that every adoption carried out by the State since 1952 was done in line with the legislation of the day.

If that level of certainty exists at official levels, then why not open the files, let everyone see them and, for once, have this country do the right thing?

Bessborough Mother and baby vaccine trial files altered in 2002

The files of vaccine trial victims in Bessborough Mother and Baby Home were altered in 2002 — just weeks after the Commission to Inquire into Child Abuse sought discovery of records from the order running the home.

Material obtained by the Irish Examiner under Freedom of Information shows that changes were made to the records of mothers and children used in the 1960/61 4-in-1 vaccine trials.

The Commission to Inquire into Child Abuse (CICA) had sought discovery of the records from the Sisters of the Sacred Heart of Jesus and Mary on July 22, 2002. An affidavit was sworn on October 3, 2002, and on a number of later dates in 2002 and 2003.

The document listing the changes opens with: “8.8.02 Checked the 20 files.” This is immediately followed by: “9.8.02 Made the changes.” The changes made to files Nos 5, 8, 11, 12, and 15 to 20 are then detailed.

The changes include:

  • The alteration of discharge dates of mothers (by a period of one year and two years);
  • The changing of discharge dates of children;
  • The changing of admission dates of mothers;
  • The alteration of the age of a mother (by two years);
  • The alteration of dates of adoption;
  • The changing of baptism dates and location of baptism;
  • The insertion of certain named locations and information into admission books.

A data protection request released to Bessborough vaccine trial victim Mari Steed in 2011 also confirms this timeline.

A file listing details about both her and her natural mother was created on August 6, 2002. This was done following a request “for Solicitor re Vaccine”. Ms Steed’s natural mother is listed as “No 19 on Doctor’s List”. The record lists “All Counties DUBLIN” above discharge information pertaining to her mother.

The document listing the changes notes that this information was inserted into Ms Steed’s original file.

The entry reads: “No 19 [house name redacted] Crossed out the Indoor Reg entry as it is corssed (sic) out in the Book. Inserted DUBLIN after All Counties.”

Another entry reads: “No 17 [house name redacted] Changed nm [natural mother] disch from x/x/60 to x/x/62”.

Given that the trial took place between December 1960 and November 1961, this change has the effect of placing this woman in Bessborough during the period her child was vaccinated.

If she was, in fact, discharged from Bessborough at the date given in 1960, she could not have been present to consent for her child to have been part of the vaccine trial.

The question of consent was the key issue being examined by the CICA’s Vaccines Module before it was shut down in 2003 following a Supreme Court ruling.

The Irish Examiner put a series of questions to the Sisters of the Sacred Hearts of Jesus and Mary in relation to the document. It declined to answer any of them.

A statement from Ruairí Ó Catháin solicitors, representing the order, stated that it had “no immediate knowledge of any specific event” concerning alterations made to records.

“We are in contact with the commission in regard to the Mother and Baby Homes Investigation, which is having our full co-operation. For the present, as is appropriate, we will be dealing directly with the commission on all related matters,” said a statement.

In a separate statement, the order said it wished to “categorically state that no documents were altered”.

“In your recent correspondence, you are suggesting that something illegal or inappropriate had occurred in regard to the documents to which you refer,” said the statement. “This is entirely untrue; and we will continue to deal directly with the official commission on all such matters.”

The Mother and Baby Homes Commission has copied all the records relating to Bessborough and is currently analysing them alongside the other 17 institutions being examined. Its final report is expected in February 2018.

Bessborough Mother and baby vaccine trial files altered

The files of vaccine trial victims in Bessborough Mother and Baby Home were altered in 2002 — just weeks after the Commission to Inquire into Child Abuse sought discovery of records from the order running the home.

Material obtained by the Irish Examiner under Freedom of Information shows that changes were made to the records of mothers and children used in the 1960/61 4-in-1 vaccine trials.
The Commission to Inquire into Child Abuse (CICA) had sought discovery of the records from the Sisters of the Sacred Heart of Jesus and Mary on July 22, 2002. An affidavit was sworn on October 3, 2002, and on a number of later dates in 2002 and 2003.
The document listing the changes opens with: “8.8.02 Checked the 20 files.” This is immediately followed by: “9.8.02 Made the changes.” The changes made to files Nos 5, 8, 11, 12, and 15 to 20 are then detailed.
The changes include:
– The alteration of discharge dates of mothers (by a period of one year and two years);
– The changing of discharge dates of children;

– The changing of admission dates of mothers;

– The alteration of the age of a mother (by two years);

– The alteration of dates of adoption;

– The changing of baptism dates and location of baptism;

– The insertion of certain named locations and information into admission books.

A data protection request released to Bessborough vaccine trial victim Mari Steed in 2011 also confirms this timeline.

A file listing details about both her and her natural mother was created on August 6, 2002. This was done following a request “for Solicitor re Vaccine”. Ms Steed’s natural mother is listed as “No 19 on Doctor’s List”. The record lists “All Counties DUBLIN” above discharge information pertaining to her mother.
The document listing the changes notes that this information was inserted into Ms Steed’s original file.
The entry reads: “No 19 [house name redacted] Crossed out the Indoor Reg entry as it is corssed (sic) out in the Book. Inserted DUBLIN after All Counties.”
Another entry reads: “No 17 [house name redacted] Changed nm [natural mother] disch from x/x/60 to x/x/62”.
Given that the trial took place between December 1960 and November 1961, this change has the effect of placing this woman in Bessborough during the period her child was vaccinated.
If she was, in fact, discharged from Bessborough at the date given in 1960, she could not have been present to consent for her child to have been part of the vaccine trial.
The question of consent was the key issue being examined by the CICA’s Vaccines Module before it was shut down in 2003 following a Supreme Court ruling.

The Irish Examiner put a series of questions to the the Sisters of the Sacred Hearts of Jesus and Mary in relation to the document. It declined to answer any of them.
A statement from Ruairí Ó Catháin solicitors, representing the order, stated that it had “no immediate knowledge of any specific event” concerning alterations made to records.
“We are in contact with the commission in regard to the Mother and Baby Homes Investigation, which is having our full co-operation. For the present, as is appropriate, we will be dealing directly with the commission on all related matters,” said a statement.
In a separate statement, the order said it wished to “categorically state that no documents were altered”.
“In your recent correspondence, you are suggesting that something illegal or inappropriate had occurred in regard to the documents to which you refer,” said the statement. “This is entirely untrue; and we will continue to deal directly with the official commission on all such matters.”

The Mother and Baby Homes Commission has copied all the records relating to Bessborough and is currently analysing them alongside the other 17 institutions being examined. Its final report is expected in February 2018.

Questions raised as to whether gardaí told of Bessborough rape cases

Questions have been raised in the Seanad as to whether the cases of pregnant children in the Bessborough mother and baby home, in Cork had been reported as rapes to gardaí.

Details from maternity registers, released under the Freedom of Information Act by Tusla — the Child and Family Agency, reveal that between 1954 and 1987, girls as young as 12 had been pregnant in the institution.

The youngest child mentioned in the registers dated from 1968, and was listed as being aged 12 when transferred from Bessborough to St Finbarr’s Hospital, where her child had been delivered stillborn in January.

The presence of children in Bessborough, pregnant as a result of rape, continued into the 1980s. The Maternity Record Book 40, for example, lists a girl of 14 whose child was stillborn in 1982.

Speaking in Leinster House, independent senator and former Children’s Rights Alliance chief executive Jillian van Turnhout asked if Tusla or its predecessor — the HSE — had reported these cases to the relevant authorities.

Ms van Turnhout said: “Two cases stood out. One was in 1968 which was the year I was born. A child of age 12 who was a rape victim had a child in the home. That woman would now be 57. In 1982, there was a birth mother who was 14 years of age. I was 14 in 1982. She would now be 47. Her record states, ‘Premature, 33 weeks, gasped, and died’. I want to know if these cases were reported to the gardaí.”

Ms van Turnhout referenced the fact that, under section 19 of the Commissions of Investigations Act 2004, statements and documents given to the mother and baby home inquiry are inadmissible as evidence against a person in any criminal or other proceedings.

“These women are still alive today and I do not trust what has happened in these homes. The reports and figures show us why it is vital to have an audit,” she said.

“The State has a responsibility. These were children who were raped.

“What are we doing for them now? We can talk about times being different then but the last case goes up to 1982, it was not such a different time. What are we doing now with the full knowledge that we know? Are we ensuring that they will at last get justice? These women, very likely still alive today, were mistreated horrendously by the State. By our actions now we can show we have learnt the lessons of the past.”

Seanad leader Maurice Cummins (FG) described the revelations as “appalling”, and said they need to be dealt with “as a matter of urgency”.

The Sisters of the Sacred Hearts of Jesus and Mary declined to answer any queries on the subject, stating it would only communicate directly with the mother and baby homes commission.

http://www.irishexaminer.com/ireland/senator-jillian-van-turnhout-asks-if-gardai-told-of-bessborough-rape-cases-369341.html